I realize it has been awhile since our last update so here goes. As you all know, Rileys' last MRI was clear. We have been busy watching Riley grow and play like a "normal" kid. She has been growing like a weed and has put on a few more pounds. Her last weigh in she was 26.5 pounds. Her vocabulary has expanded as well. Sometimes I wonder if she has been reading the dictionary while she sits on the potty. Speaking of potty. Riley is hot and cold when it comes time to go. She likes to get completely undressed and sit for awhile Sometimes she asks for a magazine to help pass the time. We will get her over this little hurdle and should be routinely using the potty in no time.
Riley has been to a "little jumper" class where she was able to interact with children her own age. I was able to go with her to her first class where she was very timid and shy. Jen told me that her last class was Friday before Halloween and she slowly came out of her shell. Riley dressed as a turtle and was scared by a dad who dressed in a very realistic Batman costume. (As if Batman is real) Riley was afraid at first but by the end of the class she was ready to be Robin.
Halloween was a wonderful day. In the morning we went to Cardon's to deliver Halloween blankets to the kiddos on the 7th floor. Riley was dressed in her costume and went knocking on the doors. Riley really enjoys giving to others. Riley was also able to visit with some of her favorite nurses. Most of all, she gave Jen, Grandma Lee Lee and I a big smile. It was a great feeling watching her give not only the blankets but smiles. I am so proud of our little fighter. Afterwards, we went to the great grandparents for her to get some Trick or Treat practice. In the evening we loaded up the wagon and went to cousin Luckys' for dinner and a group "Trick or Treat" with some of her cousins. We made the rounds and returned home to pass out candy. Riley did great and didn't want to change out of her turtle costume.
As most are aware, we celebrated Jen's birthday on the 30th. This day also marks the 1 year anniversary of Riley's diagnosis. This was and will continue to be challenging day for years to come. We cherish each and every day with Riley and look forward to a lifetime of anniversaries.
On November 20th we are going to have the drawing for the prizes at Skippy's. We will be there in the evening where Riley will pick the lucky winners. Hope to see you there.
We know that Riley is our child but she is everyones kid. We enjoy sharing our stories and photos with each of you. Thank you all for reading and being a part of our fight.
Wednesday, September 29, 2010
Last night Riley was very interested in her potty chair. I had it packed to take to the Grandparent's house but she unpacked, put it back together and in the bathroom. By the time I figured out what she was doing she had her diaper off. She sat down and then the most wonderful sound could be heard...she was very proud of herself. I asked her if she was done and she said "No mama, I try more." It truly was a wonderful moment. It brought a tear to my eye. She is growing up so fast. The last several months have been amazing. You would never know that she had gone through what she has except for the bald head. She is making amazing strides everyday and we are truly grateful that Riley's tumor was discovered when it was. We know several families that are not having such luck and we as you to keep them in your prayers. The powers that be have a strange way of doing things but it will all work out in the end.
Tuesday, September 21, 2010
Riley is doing great. She had an appointment with Dr. McBride and she is happy with Riley's progress. Riley continues to act like a two year old which is pretty interesting to say the least. One minute she is happy the next she is mad but then she goes right back to being happy. I just don't get it but oh well, it's just a stage right? This weekend we have so much to do and hopefully enough time to do it. Riley has her first tumbling class on Friday. We have the Children's Cancer Network conference to attend on Saturday and then on Sunday is the Hope Walk for Hope Kids. Whewww....I am already tired. It is well worth it to do everything that we are now doing. Who knew that having Riley's diagnosis would turn out to be a way to make new friends and doing exciting new things? This whole blog is a work in progress. I am still working on adding it to our site. It will be a link back to this site but there will be a blog for events for Gifts From Riley.